Requirements for Brazilian Outpatient Centers of Excellence in Hidradenitis Suppurativa: Consensus

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Citações na Scopus
1
Tipo de produção
article
Data de publicação
2023
DOI
Scopus
Web of Science
PubMed
Título da Revista
ISSN da Revista
Título do Volume
Editora
DOVE MEDICAL PRESS LTD
Autores
BELLEI, Ericles Andrei
SHIROZAKI, Miriam Emi Makinodan
PUGLIA, Ana Lia Pradella
CARVALHO, Andre Vicente Esteves de
VALLILO, Camilla Carlini
BARROS, Danilo de
TAMASHIRO, Erika Yumi
CINTRA, Gabriela
DUARTE, Gleison Vieira
Citação
CLINICAL COSMETIC AND INVESTIGATIONAL DERMATOLOGY, v.16, p.2029-2044, 2023
Projetos de Pesquisa
Unidades Organizacionais
Fascículo
Resumo
Background: Hidradenitis suppurativa (HS) is a chronic skin condition. Its complexity and impact on patients highlight the need for multidisciplinary care that can address the physical, psychological, and social aspects. Centers of excellence can ideally provide the necessary infrastructure, resources, and expertise to effectively treat HS. However, there are still no consolidated models of centers of excellence in HS, and establishing their foundations is an intricate research challenge. Purposely, design and co-creation as innovation techniques are helpful approaches to this type of research. Methods: In this study, we conducted a co-creation with consensus among HS specialists to propose the criteria and requirements to establish outpatient centers of excellence of HS in Brazil. We followed a linear process with mixed methods in 6 stages. Results: The process resulted in 10 categories for establishing outpatient centers, including their respective requirements, rationale, and classification. The categories include onboarding and welcoming; infrastructure and procedures; infusion therapy; flows and referrals; staffing; disease management; metrics during diagnosis; metrics during treatment; awareness and advocacy; research and education. Discussion: The idealized outpatient centers can play a role in the complete multidisciplinary treatment for HS and advancing the science of healthcare services by providing a focus for research, training, and translation of findings into practice.
Palavras-chave
hidradenitis suppurativa, centers of excellence, co -design, consensus, health services research, patient-centered care, community-based participatory research, healthcare innovation
URI
https://observatorio.fm.usp.br/handle/OPI/58257
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Coleções
Artigos e Materiais de Revistas Científicas - HC/ICr
Artigos e Materiais de Revistas Científicas - HC/ICHC
Artigos e Materiais de Revistas Científicas - ODS/16